I don't want advice about this stuff or for anyone to tell me what to do (I feel like I've had enough of that lately and it stresses me out), although I don't mind comments. I'm not looking for any one to feel sorry for me either. I'm just putting this out here because it happened Wednesday evening and I feel like expressing it to an extent.
As some people know (and some people don't), I have occasional seizures, as a side effect of another health issue I had about 15 years ago. Hard to believe my stroke happened that long ago now, but then again, not really, because time flies faster and faster.
I'm not going to get into an elaborate amount of detail abut my seizures and related factors, but I will say I can usually tell less than a minute before one is about to happen, so I can at least sit down on the floor.
But then afterwards, I don't know exactly what happened (I mean I know I had a seizure but I don't remember the part right after that involves getting up off the floor, walking into a different room and so on). This time I think I was even more confused than the last few times. I was confused about what time it was and how long ago the seizure happened (although that's usually the case). I had trouble finding my phone (it was just on my bed which is where I often keep it). I had trouble figuring out how to use my phone, how to find the contact info on my phone, what to press to make a phone call (later I saw that I had sent Darryl two little random emojis on facebook messaging which might have been me trying to use my phone but being confused). So I felt more confused (and for a longer time) than I usually do after a seizure. I feel like it took me at least 20 minutes to figure out how to use the phone.
I had been upset, stressed and sad on Tuesday. I then felt somewhat better on Wednesday, but still sad. Even though I've been in menopause for about a year or two now, it felt somewhat similar to a variation on PMS, which I haven't had in quite a while.
Then shortly before the damned seizure happened, it suddenly got substantially worse. I started to feel guilty about my FB Wall Posts/personal blog post from Tuesday, my heart started racing a bit, I felt very unnaturally negative and off-filter and as if I was on the brink of a panic attack. I couldn't make it go away and it was getting worse. It was very uncomfortable (mentally more so than physically). I thought about lying down because I didn't know what else to do. First I was going to pee, but then while on the toilet, the sensation I have right before a seizure came over me. I quickly wiped, flushed, moved into my computer room, sat down where I usually sit down there and had the very uncomfortable out-of-control sensation as if my neck is suddenly twisting itself to one side (the right side) and in my mind, I'm randomly sitting on my computer chair (even though I'm actually sitting on the floor) and seeing some random cartoon-ish images. I remember seeing a cartoon chicken.
Next thing I know, I'm in my bedroom, looking for my phone, and after finding it, having trouble figuring out anything about it for quiet a while. I was confused with words, which happens for a while after one of my seizures. I finally managed to call my mom about a minute before midnight (I know she stays up late). But then after we got off the phone, I ended up calling her back again, because I then felt a sore lump on the right back of my head, saw two red marks on the left side of my neck (probably/hopefully just scratches?), and saw that I had bit the inside bottom of my lip. I am not sure how any of those things happened, especially the lump on the back of my head, because last I knew, I was sitting on the floor. Maybe I somehow bumped my head into a door or a wall after I got up. The lump on the back of my head and the scratches on the left side of my neck make me uncomfortable and nervous since I'm not sure exactly what caused them. It sucks not knowing how something happened. It causes me to think a bit about my damned stroke.
The seizure itself also makes me feel uncomfortable and nervous because it's only been a tiny bit more than a month since the last one I had. The last one was October 7, three days after I got my latest Covid vaccine. Normally I don't have seizures anymore near that close together. For a while, I was only having one or two a year. Not one in October and another one in November. Maybe this has something to do with the latest Covid vaccine, because I remember feeling low energy, down and oddly out of it for several days after I got that (more mentally out of it than physically out of it, which I'd not experienced to that extent after one of my previous vaccines). I'm repeating myself again here, but it's bothersome because I don't think I've ever had only about a month before the last seizure. I certainly don't want my seizures to start getting worse or more frequent.
I suppose it could have something to do with hormones or stress. Despite trying not to mentally overreact too much about the election, (not that I'm ignoring it, but I didn't want to escalate my stress into some sort of toxicity) perhaps the disturbing fact that Trump won kicked in more about a week later, plus which some stressful seizure pill oriented paperwork I've been trying to deal with that has to do with health insurance suddenly telling me I might not be eligible for the pills I've been taking for years being largely covered by insurance, so I might have to switch to different generics and deal with different side effects and that's very upsetting to me, because I remember what some of my previous pills side effects were like.
Anyway, apparently it's just been one of those bothersome weeks and hopefully I feel better tomorrow. And hopefully everyone else who is overly stressed out or upset feels better too (but without ignoring real issues).
Showing posts with label seizures. Show all posts
Showing posts with label seizures. Show all posts
11/14/24
12/4/22
NEW! Three of my Internal Suffocation Poems in Misfit Magazine!
"Here's my small fucked up contribution
to the world. Speech stilted,
memory desiccated. Me
exaggerating everything.
My lingering outbursts
turn into violent mosh pits
inside my own mind.
Then I fall down into oblivion.
Then I get back up again..."
Delighted to have three of my Internal Suffocation poems making an appearance in the NEW Fall 2022 Issue of Misfit! (Looking forward to reading all the other poetry in this issue too!)
A link to my poems - http://misfitmagazine.net/archive/No-35/cook.html
A link to the whole issue - http://misfitmagazine.net/current.html
to the world. Speech stilted,
memory desiccated. Me
exaggerating everything.
My lingering outbursts
turn into violent mosh pits
inside my own mind.
Then I fall down into oblivion.
Then I get back up again..."
Delighted to have three of my Internal Suffocation poems making an appearance in the NEW Fall 2022 Issue of Misfit! (Looking forward to reading all the other poetry in this issue too!)
A link to my poems - http://misfitmagazine.net/archive/No-35/cook.html
A link to the whole issue - http://misfitmagazine.net/current.html
2/21/22
New! Three new poems of mine are appearing in the Terror House ("Death Will Always Exist," "Field Dressing Fantasy," and "Body Captivity")
"...You’re horrified by the idea of
not existing
and that nobody will remember you very well.
You won’t be able to
remember yourself
or think for yourself or speak for yourself
and that’s your current interpretation of Hell.
Whenever you have one of your unexpected seizures,
you then spend weeks feeling negative and afraid
of unexpected death. You don’t feel ready to not exist yet."
Three new poems of mine are in the Terror House today - "Death Will Always Exist," "Field Dressing Fantasy," and "Body Captivity". You can read more HERE - https://terrorhousemag.com/exist/
Labels:
2022 Juliet Cook,
2022 poetry,
body issues,
death,
horror,
Juliet Cook poetry,
poetry,
seizures,
terror
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