8/29/11

Seizure Horror Fest

At the moment, I don’t really feel like writing about this or doing much of anything, but if I don’t write/do things, then what is the point of existing, so I guess I will give this a try.

This past week was an unexpectedly unfortunate, bad week for me. It was supposed to be a uniquely creative week, involving my first time being a part of the extra-special Kerouac Fest at the Grand Midway Hotel in Windber PA. Part of the festivities were going to involve me & Margaret Bashaar introducing Margaret’s new poetry chapbook, ‘LETTERS FROM ROOM 27 OF THE GRAND MIDWAY HOTEL’ , which was inspired by the haunted hotel and published by my Blood Pudding Press. Unfortunately, I did not get to go and participate in that.

The day before I was to leave, I was working on packing my attire and took a quick break online. A few minutes after 3:00, I wrote a comment to Margaret on facebook. The next thing I knew, I woke up, was lying on my bed, and was gazing upon my new manikin with confusion, not remembering where it had come from. Even my older headless manikin seemed confusing. Even all the clothes lying on my bedroom floor and the passage of time seemed confusing.

As soon as I got up, it got worse. I felt nauseated, dizzy, faint, and as though I was about to pass out. I immediately become afraid that I was dying. About a year and a half ago, I had suffered from a sudden, unexpected carotid artery dissection which led to a couple aneurysms which led to a stroke. Was I having another stroke? Was I about to die? I felt like I was going to faint and collapse. I called my mom. As I glanced at my cell phone, I saw that it wasn’t quite 4:00 yet, so it’s not as though a lot of time had elapsed since I was online, but what had happened since then?

My sister and parents arrived to my house shortly. I was still feeling disoriented and dizzy – and we soon found out that I must have fallen down hard, because the back of my head was terribly bruised and painful. I later found out that the bottom of each elbow was also bruised. Within about an hour, most of my memory came back to me, except for the memory of when/how/why/where I had fallen down. I figured I had suddenly passed out but why? That is not something that often happens to me. I had been feeling fine that day, eating healthy, drinking plenty of water. I wasn’t drinking any alcohol or doing any drugs. What the heck had happened?

We decided I should go to the emergency room just to make sure I did not have a concussion. I wasn’t lucking forward to doing that; I was worried it would take several hours, when I still had packing and other last minute preparation for my trip, for which I was scheduled to depart via Megabus the next morning. Unfortunately, I did not end up departing. Even though my CAT scan did not indicate a concussion, they suggested the fact I couldn’t remember what had happened made them feel as if I could have had a seizure, so they wanted to send me to the hospital for more testing.

Next thing I know I’m inside an ambulance, talking with the man behind me. I wasn’t in a terrible mood because I was thinking that my hospital testing would last a few hours, then I’d be home and even though I would be rushed, I’d still have time to prepare for leaving the next morning. Well instead, I ended up being in the hospital from Tuesday night until Friday night, receiving multiple tests and lying around on a hospital bed with an IV inserted and a heart monitor plugged in. Instead of being part of an artsy extravaganza with poet and photo artist friends, I was a hospitalized, disabled, out of control old lady.

And then even though none of my testing indicated that I’d had a seizure, they still decided that I should take seizure pills, twice daily, just to be on the safe side. Well I have always been an anti-pill person; the last thing I want is some pill changing my personality, my passion, my sex drive, my interest in life, and/or making me fat. Blah blah BLAH.

I've not had a seizure before in my life; I don't have epilepsy. BUT sometimes people who suffer from a stroke then start having seizures, due to how the stroke affected their brain. BUT my stroke happened more than a year and a half ago, so why would seizures suddenly start overtaking me after all that time? After a rather crappy (sad, depressing, difficult) year or so, things were finally becoming so much happier and better - and now I'm going to start having seizures? I'm hoping it was just a weird fluke.

But even if it was a fluke, the pill I've been given is a seizure related pill – and research indicates that some people have bad side effects from it. I'm really quite nervous about it. Again, I don't want a pill to change my personality, my energy, my poeticism, or anything like that.

I don’t want it to zone me out or make me unemotional. I don’t want it to make me uninterested in poetry, uninterested in art, uninterested in knee highs, uninterested in almost everything.

I don't want a pill to change me. I don't want to be lacking in passion.

I’ve started taking the darn pill but have also started taking notes and will share some of those soon.

I could go into more detail and perhaps I shall later, but being in the hospital for four days and then feeling out of it and depressed my first few days home have put me behind, so for now I need to get to work on publishing and promoting the chapbook that I was supposed to have available live at a haunted hotel while hanging out with its scrumptious poet lady, but alas. Instead I’m all worried about seizure medicine. Blech.